This morning when we arrived at the hospital at 6:30, the doctor informed us that Presley had some issues over night. She had a temp of a 100, then in the attempts to cool her down, her temp dropped as low as 94, followed by a blood pressure and heart rate drop. Labs were drawn, medications were stopped while others were started, all in the attempts to stabilize her.
She was stable upon our arrival, as well as wide awake. The doctor said that the heart surgeon would be made aware of these happenings and may decide to push her surgery back. Mike and I waited at her bedside, in disbelief, to hear the final word.
As I looked at her, tube down her mouth, endlessly tonguing it, trying to get it out and struggling to move, but unable to due to her arms being tied down, I agonized over the idea of having to see her like this even one more day!
Thankfully, the surgery is 'a go'.
Mike and I are in the O.R. waiting room staring at this flat screen that has all of the names (in code) of patients in the O.R. There are one of three symbols by each name. The first one is the symbol of a 'knife', YES, a knife. Which means the patient is being operated on.
The second symbol is of 'little stitches', this indicates the procedure is closing and the third symbol is a 'band aid', meaning the procedure is done.
The anesthesiologist did say beforehand that it would take some time to get all her lines in, hooked up on monitors and on the ventilator, before the procedure would start.
So, Mike and I sit in the O.R. for a good hour, staring at the flat screen, waiting for the knife symbol to be by our daughters name.
Seriously, they need to rethink that symbol.
10:00 was when it appeared. Shortly followed by the surgeons nurse coming into the waiting room to confirm that he is now opening her up and starting surgery.
So far, all is well. Not much else to tell. She will come back out in an hour or so.
Thanks so very much for your thoughts and prayers, we will keep you posted.
16 comments:
No words only prayers.
Sweet Presley...no matter what she's going through, what's going in/out of her (tubes & such), she still manages to pull off being a VERY PRETTY little girl!! I guess she just can't hide it, can she?? Thanks for the update. Yes, I agree, they need to think of a new symbol!! Still praying & will be...
I am still praying with all my might. Love you all
Melinda
kele,
little presley, you and mike, and all of presley's O.R. staff is in our prayers!!! hopefully, i will catch you in the waiting room in a bit. henry is on the same floor as the waiting room. i know that if anyone can help your little one, it is dr. m. i can't wait to hear that miss presley is out of the O.R. and the surgery went well!!! she's a fighter!!!!
Giles family
There are prayers coming from Missouri too. I am at work and keeping your site open on the computer so I can check for updates. I am praying for you all, the doctors, nurses and of course your little butterfly.
She is so beautiful!!! We are praying!
<>< The Carlton's
I agree with you about the knife symbol. What were they thinking when they came up with that. I'll be checking in on you guys and praying all day!
Just called grandma to fill her in, she agrees with you, me and Kristy, they need to rethink the "knife"! Glad so far so good, still praying at each little break and while I am working. That picture still show a VERY beautiful Presley - with mommie's curls!
Heather said it best. Ditto.
Kim
Sending prayers your way....Love, Marci The Prayer Bears and fellow blogger
Thinking of you and sweet Presley. It breaks my heart that she has had to endure so much. Please know that we are praying and praying and praying for all of you.
Soon she will be home where she belongs.....I just know it.
Lots of loves....
Pam and Rhett
I was given a link to your site today on the T21 board that I frequent. When I read your mommy's story I cried as so many of those same words were in my story! My daughter Lily is 4 now and she had OHS at 6 months after surviving and overcoming Hydrops prenatally - she was my miracle! I just want you to know that Lily and I will be praying for your beautiful Presley and praying this will signify the beginning of a new era and healing for her!
God bless you!
Lisa - mommy to Lily Marlene
This is the first time seeing your beautiful daughter. I send Prayers and huge hugs to your family!!!
Jenn and Brook
Kelly, I'm so glad everything went good. The power of prayer truely works. Just keep hanging in and remember she's one step closer to home!!
Love, Shannon McNiel
Oh Kele, my heart breaks reading this post as I remember all too well when McKayla would fight the intubation, she would just struggle and struggle, the doctors would eventually have to sedate her even more because the tie downs were not working. It is an awful way to see your child, many hugs! I am sorry that I am just now reading this too... Lots of prayers for you guys!
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